Debbie Ivanova’s blog

Why lived experience is fundamental to understanding restrictive practices

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Lived experience is central to how we understand and how we improve care.

We know that we need to do more, especially to reach people that may not know about our work. People have told us that issues like restraint, segregation and seclusion are difficult to talk about and can be traumatic for those that have experienced these practices first hand. They can evoke strong emotions and can trigger the experience all over again.

People must be given a choice of how they can contribute.

As we’ve already mentioned, we know very little about how, and how extensively, staff in social care services use restrictive interventions. There’s a lack of centrally collected data in this area, and staff may have less access to advice and support than in hospital settings. However, that doesn’t mean we can’t do more to find how restraint, segregation and seclusion are being used in these services, and gathering the views of people with lived experience is an important way of us building a better picture.

If you want to speak to someone about the review, please email The team will get back to you as soon as possible.


We make sure health and social care services provide people with safe, effective, compassionate, high-quality care and we encourage care services to improve.

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